The Cerebral Palsy Network

My past experiences have been being part of the Special needs PTA in Shelton Wa. As well as the Inner Agency Council of Special Need Parents. Here at CPN I serve on our many different committees. I am an advocate in my community and Olympia dealing with school issues for children and adult issues as well. I also have helped many people online in an advocate capacity. I created the Cerebral Palsy Network out of my frustration of the lack of services and support available in my community 6 yrs ago. Now we are a group world wide. My oldest daughter Amanda, 20 has Schizencephaly, Mixed dystonia CP. I have dealt with many aspects of raising a child with a disability. I also will help difficult cases were Child Protective services is an issue. I am aware of resources in my community and if I don't know of one I will search for it till I find it. It is important to me that all individuals have the right to life, that is full of choices and dreams. To have someone who believes in them when the world feels it is against them. Support is the # 1 key to success to a parent and an individual with disabilities.

Washington CPN Page

Email Dena

msn messenger: cerepralpalsynet2003@msn.com

Lynda Domina
Oregon Regional Director

My Name is Lynda Domina. I live in Bandon Oregon. I have been working with the disabled for over 10 years. My Youngest son Wesley Paswaters was born
healthy but contracted Encephalitis at the age of 17 days. I have been the major caretaker for him. I have several years experience with working with
adults with a variety of disabilities including Cerebral Palsy in the past as a CNA. I also have been working with Wesley since he was an infant doing his daily physical, occupational, speech and sensory therapies. I do not have alot of formal training with these but as all the people here know we get plenty of experience! I am very involved in his education! I have had to do alot of work in order to get Wesley the program that he has in school today and have helped to start get his school working more with Assistive technology. Wesley used both the pic syms and the pix writer to help him to be able to communicate. I work with him teaching him to use a computer at home and also to become more self sufficient at home. Working to gain a better knowledge of Cerebral Palsy and his other disabilities has been a large part of my life. I am working at becoming more knowledgeable in being a leader so that I can do a better job of being what a good director is. *lol* Hopefully I will learn more and be able to help more people learn about CP. I am hoping to be able to make people more aware that the fact that a person has a disability does not make them less of a person! I will do my best to help anyone I can! Please feel free to contact me!
E-mail: Email Linda
MSN Messenger: sandpiper34@hotmail.com
I will get back to you as soon as possible!
Lynda Domina
Regional Director for The Cerebral Palsy Network of Oregon (mom to Wes, 8, CP (right sided hemi) Seizures, and Mental
Retardation, Possible mild Autism
sandpiper's children's disability pages
http://sandpiper2.tripod.com/index.html
Oregon CPN Page

Email Lynda

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Vicki Hendrickson
California Regional Director

I have a High school diploma, and was active in Special Ed in school and camp counselor for camp for the
disabled. I am a Mother of 16 yo daughter, total care child dx'ed hypotonia/dystonia CP, visually impaired, (optic nerve hypoplasia, nystagmis) seizure disorder (infantile spasms). Also was a premature baby considered low birth weight with IUGR with 5 weeks NICU stay. She uses a communication device, wheelchair (manual & electric), wears glasses, Adaptive equipment: Aquatic bath lift, wheelchairs, AFO's, standing frame and Dynavox. Specialist that I've/she's worked with. PT, OT, Speech therapist, Orientation & Mobility Specialist. Therapies we've used. Traditional PT, OT (12 yrs) and hippo therapy (10 yrs). Worked with local agencies: San Andreas Regional Center, (currently receiving Respite and Medicaid waiver) Parents helping Parents (was on support group to talk to new parents regarding, Premature babies, apnea monitors, infantile spasms). Was on Board of Directors for Special Technology Center. This was a center that worked with kids and parents to find computer access to meet disabled children's needs. Member of the Library of Congress receiving books on tape for the blind. Blind Babies Foundation. Have had battles regarding therapy (PT/OT) with CCS (California Children's Services). 10 yrs with Shriners for orthopedic follow up as well as RT. hip Ostotomy, pin removal, asatabular augmentation (hip socket reshape) Rhizotomy and Baclofen pump trial and long term extensive rehab following surgery. Advocating for parents in California for CPN to get services needs met for some of our kids.

California CPN Page

Email Vicki

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Last updated 03/24/03

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